Coping as Adults


It seems to be working – lately we have been giving our son jobs to do if he can’t control his mouth. Last week there was one evening where that snowballed a bit, and he ended up with quite a few jobs. After getting a few jobs for saying mean things like, “you’re stupid,” when I told him he needed to stop playing computer so that we could go pick up my husband, (his dad!) from work, he got upset about how many jobs he had, and couldn’t seem to shut his mouth off, ending up with 10 jobs. Some of them were very light, though, like, “go feed your sister’s fish.”

But lately he has been able to keep the job count a bit lower. I am so proud of him. I understand how hard it is to control one’s tongue,  as I was constantly in trouble for that same thing as a child. I never dared call my mom a name, but I did get into verbal wars with my siblings, constantly. I still have a long way to go on total tongue control, which means that my poor son does not have a perfect example to follow.

Thank goodness for Jesus’ example. Jesus wasn’t always, “Minnesota Nice.” He said things that were hurtful, unpopular and got himself into trouble sometimes. But Jesus wasn’t always loud and brash, either. Sometimes he used no words at all, but let his actions do the talking.

My prayer for all of us today, and especially for those of us with Asperger’s Syndrome or Autism is that we would be able to control our tongue – to really think before we speak. I pray that we would remember to carry our gripes to God, first, so that He can help us sort through what really needs to be communicated, and what we should just let go of. Often things we find offensive are just us misunderstanding a situation, or being far too petty. I ask God’s love for us, so that we can let that love cover a multitude of sins in ourselves and others, forgiving as he has forgiven us.

(Marriage tip #3)

I wonder if this area of marriage is easier for a married woman with Asperger’s Syndrome/High-functioning Autism than it is for a married man. The reason I write this is because people with AS/HFA generally do not like to make small talk.

My husband wishes I was a little better at small talk, but being a guy, he doesn’t mind that I am quieter unless I have something I really want to talk about. However, I wonder if men with AS/HFA stress their spouses out a bit more on this point.

Here’s the reason we AS/HFAs don’t like small talk, we don’t gain the same things from small talk that neurotypical people (NTs) do. I have been told that NTs use small talk to gauge how their audience is feeling, to see if their audience is open to talking about something deeper.

Those of us with AS/HFA are not able to read the subtle cues that NTs read during small talk, so small talk is just a pointless, time and energy wasting exercise to us. My husband has decided at times that I must not be in the mood to talk about something important because I seem exasperated, or tired while he tries to engage in small talk. The truth is that I would love to talk about something important. I am feeling exasperated during the small talk because I do not understand the point of it. Anyone gets exasperated if they don’t understand the point of what someone else is trying to communicate to them.

I have also been told that NTs use small talk to warm themselves up. Because verbal communication is generally a bit difficult for us with AS/HFA, we generally only do what we absolutely need to do. Can you see why that would mean that we don’t like to warm up first, but just jump right in?

Finally, we find it very confusing to switch from small talk to something more serious. In our black and white world, either we are hanging out and chatting about nothing (small talk), or we are trying to solve the world’s problems. If we are in the mood for one, we are not planning on being in the mood for the other, so are surprised when the subject moves from light to serious.

So NTs, don’t assume that your partner doesn’t care about what you have to say when they don’t warm up to your small talk. Just jump in and start talking about something important to your relationship, and see if that doesn’t get them interacting a bit more.

I am slowly learning how important it is for my husband to warm up with small talk. It is not comfortable for me, but I just have to remind myself that if I want to have a good relationship with him, I need to do what he needs, not just what I need.

(Marriage tip #2)

I have learned that if I am upset with my neurotypical (NT) spouse about something, he prefers that first I start out with some pleasant small talk, followed by a comment about how much I enjoy him. After those pleasantries, I may bring up what is bothering me using an, “I feel this way when you behave that way,” statement. I then should quickly follow up with another pleasant statement. From reading parenting and relationship materials, and listening to married friends talk over the years, it sounds like this is the way most NTs prefer to be told bad news.

This, however, is not at all how those with Autism Spectrum Disorders like to learn about an issue. First of all, we don’t particularly like small talk at any time, though most of us have learned to put up with it, and try to participate for the sake of keeping up relationships.

Second, we want you to get right to the point. It confuses us when you start out with something you like about us, just to have you then launch into something you don’t like about us. It does not make us feel good to have you say something nice about us first. In fact, we feel tricked – here we thought we were having a pleasant conversation between contented friends when, BAM! Sucker punch to the mid-section. You are not at all contented but frustrated with us.

Now it will be hard for us to have a pleasant conversation with you in the future. We won’t be able to relax – we will keep wondering when you are going to drop the hammer on us, again.

It is ok to say a quick, “I love you, but…” But please, no long, drawn out pleasantries. Just give us the bad news, and let’s move on to how to solve it.

You can tell us what you like about us after we have discussed the bad news. We may find that comforting, but please don’t waste your breath on it before. That will just make us feel patronized, disrespected, lied to, etc.

Before I realized that I had Asperger’s Syndrome, I had gotten to the point where I was really nervous about talking to my husband, because I always seemed to upset him, when I was just trying to make our relationship better, and vice versa. Now I understand he is not trying to trick me, but trying to be considerate, from an NTs point of view.

I am trying to be less direct, more round-about, and more affirming like he prefers. I fear that I am really quite terrible at it. It is so uncomfortable, and feels so conniving. But with God’s help, I hope to improve. I think he tries to be more direct with me, but that is a very foreign way for him. The good news is that we are both now aware of our differences, so we are able to focus on the issue at hand, and not so much the delivery of the news.

Do unto others as you would have them do unto you, by doing unto them what you don’t want done unto you, but that they prefer.

(Marriage tip #1)

Here is one of the first issues I remember running into with my husband. My husband and I might casually discuss what we wanted to do on the upcoming weekend one week night during dinner. Upon conclusion of the discussion, I would consider the weekend plans set. Come Saturday, I understood that we would do A, then go to B, and so on.

However, my dear husband would wake up at an appropriately late time for a Saturday morning, then ask me, quite innocently, “So what would you like to do today?”

My response – total frustration that my careful communication during the previous discussion several days prior had come to naught. A deep sense of loneliness borne from the fact that my husband, with whom I had spent careful time discussing my desired plans, had not the slightest idea what I wanted. Great irritation at being asked to repeat myself. Fear of the unknown would instantly consume me. My snappy responses would include, “Why are you asking me that? What did I already tell you?”

He would honestly have no idea what I was talking about. Eventually he would remember that we had had a pleasant conversation several days before. “Oh, and I guess we did talk about some ideas for the weekend.” But, in his mind, nothing had been set, we had just been talking.

Those of you on the spectrum know exactly what is wrong with that last sentence. We HFAs never, “just talk.” Talking takes a lot of emotional effort. Talking requires us to let loose into the world what is going on deep inside of us. Talking is not something we do for fun, but out of necessity. I can have fun talking with people, but I don’t enjoy, “just shooting the breeze.” I like to talk about something meaningful.

So how have my husband and I learned to work with each other on this typical communication problem between an NT and HFA?

I have to remind myself that he is not trying to ignore my words. He just doesn’t see every piece of communication as black and white as I do. In his world you can discuss ideas, but not settle on one of them immediately. So though I still get panicky feeling when I feel like he is changing plans, I try not to react, but remind myself of how he thinks - that he likes the excitement of change, and that it will probably be just as fun as the original plans. The panicky feeling has decreased over the years.

He has learned that I truly feel unglued when too many things are up in the air. I am not trying to be difficult, I just truly cannot even imagine living in so much grayness. I feel like I am literally losing my mind (and I do mean, literally. I know that many people write, literally, when they mean, figuratively. I mean, literally.). So he tries to soften the blow by saying something like, “I know we talked about these things, but I was thinking that this would be fun/useful/etc.” If we had planned something specific for a date night, he will call ahead or e-mail me to let me know if he is in the mood for something different. This gives me time to get over the panic, so that I can think more rationally about his suggestion, and be ready to talk with him about it as a reasonable person rather than a crazed meany.

I have learned to be open to a change in plans sometimes, because it is important for him to have that flexibility. Without it he starts feeling too boxed in. He has learned to be open to scheduling things ahead of time and sticking to them, because he knows that I need that stability at times (ok, ideally, all of the time, but that wouldn’t be fair!).

The thing that keeps both of us sane is our faith in God. God is ever faithful and stable for me, and He is ever full of surprises for my husband. So when each other falls short, we don’t have to freak out.

Hi everyone,

I have had the unfortunate opportunity to learn of the recent dissolution or near dissolution of several marriages between an NT (neurotypical person)and an HFA (person with high/functioning Autism, also known as, Asperger’s Syndrome). Since I am in such a marriage (that thankfully, has not dissolved), it has been put on my heart to write a series of blogs that cover some of the very real issues facing such a relationship. I look forward to your comments, as I definitely would like to learn a lot in this area myself!

I will continue to post the Monday blogs about dealing with having a child on the spectrum. This new marriage series will be posted on Wednesdays.

He doesn’t know it, yet, but I will be getting a lot of input from my husband, so that you NTs are correctly represented.

I saw that this was a search phrase used to find my blog. I believe that the answer to that question is: when you teach them.

I don’t know that anyone really knows right from wrong on their own. It’s just that neurotypical people are just sort of able to pick up right from wrong by watching others. Apsergians are not able to do that.

Neurotypical peple are able to generalize their experiences, too. Aspergians are not able to do that, either. So, unfortunately, unless you directly teach the child with Asperger’s what is right and what is wrong, in every situation, they are not going to know.

Once you do teach an Aspie what is right or wrong in a particular situation, they most likely won’t ever forget. I love this about my Asperger’s child! This point is not necessarily true for neurotypical children, which drives me crazy. My neurotypical child is quite forgetful concerning what I have taught her, often insisting that I never even told her about a situation in question, which I know I just reprimanded her for it not even 72 hours before.

This being said, an Asperger’s child, like all human beings may not choose to act in the way that he or she knows is right. The tricky part about disciplining an Asperger’s child is they may not be motivated to change, because even though they know that a certain action is considered wrong, they don’t really think it is, so see no need to change. For instance, there are so many things that people are supposed to do or not do to be polite. But many of those things involve white lies, which to an Aspie is apalling. So they would rather suffer the consequences than have to to compliment someone’s ugly shoes, or horrid haircut. Because they cannot live with themselves as a liar.

There are times when people with Asperger’s Syndrome know right from wrong better than the neurotypicals. Because Aspies are not burdened with all of the cultural nuances of what is expected in polite society, they simply try to follow the big rules like, don’t lie, don’t cheat, etc. They are then labeled as rule breakers because the NTs don’t like that the Aspies are telling the truth about what is really going on.

Also, I believe that some Aspies get confused and don’t know when they should follow rules and when they should not. For instance, they are taught as children not to lie. But then are told to lie to people all of the time about all sorts of things. For example, we are told to lie and say that we are fine when asked, “How are you.” We are told to lie and say, “It is delicious,’ when we really can’t stand what we are being forced to eat. We are told to lie and say, “What a lovely baby,” when it is the ugliest thing we have seen as yet. And the list goes on. So after awhile, an Aspie could conclude that breaking even the big rules must not have any real consequences, if the reason you are doing it is a good one.

The problem is, the Aspie doesn’t realize that the decision about what is a good reason to break a rule is made by a neurotypical, so an Aspie reason to break a rule is always going to be considered the wrong reason. A neurotypical person may be able to get by with the same crime because they will have a reason that is considered acceptable. Not fair, but true.

When Aspies are around people that they know care about them, or are put into a situation that is going to last beyond what they can fake their way through, they will let their true colors fly and tell you every little thing that bothers them, which is pretty much every little thing! Ask my poor husband – though I have gotten better at letting things go.

However, when Aspies are around people for just short periods of time, they often act like nothing is bothering them. This is because the act of trying to tell someone that something is bothering them is so difficult, they would rather just put up with the situation as is. They know they will get a break soon enough.

For instance, I very seldom told my roommates that anything they did bothered me. I knew that the situation would eventually change, so no worries. I just tolerated things as is, and moved on when I could. However, when I got married, I knew that I wouldn’t be able to tolerate everything forever, so I was open about what was bothering me.

Aspies can seem cold and calculating. Unfortunately, that can be the case. But here is why. Aspies actually feel things much more deeply and intensely than most other people. However, they become cold and calculating over time because they feel misunderstood, they feel like no one will ever give them what they really need, so they are going to have to get it for themselves. Because it is difficult for them to communicate at all, and on top of that, when they do communciate others often don’t understand them, they give up on communicating. They do care about others, but every little issue is so much more intense for them, that they get overwhlemed and end up just focusing on themselves because they are so overwhelmed.

I have found that the only people I am able to trust are those who have been friends with me for decades, and have proven themselves to be interested in my well-being. They, of course, are not perfect, but I am finally able to forgive and trust them because of the openness they have shown me over a long period of time.

I don’t know that any of this is so different from neurotypical people, though. Maybe it just happens to Aspies faster because of their greater difficulty in dealing with situations because of the intensity of their senses, and the intensity of their need to have things, “just so.”

For example, when I am out with my family, one of my children might ask, “what time is it?” If my watch says, 5:27, but my husband tells our child that it is 5:30, immediately I feel very agitated, to the point that I want to yell out, “it is not 5:30, it is only 5:27.” I have learned to let that feeling of agitation pass, and it is getting less all of the time, but I don’ t know that it will ever go totally away. I have never chosen to feel that way about something so small. It just is the way my body reacts. My husband says it is petty to worry about such small differences, and he is probably right, unless of course you are timing a race or something that does require exact time measurements.

We don’t mean to be picky just to be picky. We truly feel like our world is going to end, like are head is going to explode, like our heart is going to stop. Thank goodness God is faithful and able to hold us and comfort us and help us let things go. And that He provides others to be His hands and face and voice to help us learn to let those feelings pass over us, but to not let them overpower us, causing us to act in ways that always get us into way more trouble than we ever bargained for!

I love this quote from one of the leaders of our school’s Mom’s in touch prayer group. Today we focused on God being our enabler.

I laughed when I first heard her say that, not because I don’t think He is, but because we, as a society are constantly told, “don’t enable them.” This, of course refers to the need to not help out people in such a way that it allows them to remain in their bad habits. God definitely does not do that, quite the opposite as a matter-of-fact.

When I explained my sudden outburst of laughter, our leader said the title phrase. How true that is! And when you live with a medically-identified disability, you can appreciate that phrase even more.

I truly would be able to do virtually nothing in society if it weren’t for Him enabling me. Neurotypical people are not able to do anything worth anything eternally without God’s help, but they are able to do a lot that is looked at as good, useful by the world.

That is one of the blessings of being disabled by the world’s standards. There is no chance for me to get confused about how the good that I do has come about – it can’t be me, so it has to be Him!

So often I have read that people with Asperger’s Syndrome, and other ASDs do not respond correctly to pain. It is true that we do not respond typically to pain. It is often assumed that we must not feel pain at the same level that others feel it. We definitely do have a different way of integrating our senses than others. But the thought that we do not feel pain as strongly as others, I believe to be untrue.

Here is what is really going on (at least for me, my son and other biological relatives of mine who do  not think they have an ASD, but probably do). We sense the pain, but we do not want anyone else to know that we are sensing it. To let someone know means that they will start asking questions, and they may start pressuring us to treat our pain. We fear the treatment, because it may involve  even more pain, and there is often no 100% guarantee that the treatment will treat the pain. There is often a tiny percent possibility that the pain may actually become worse, or that even if the pain goes away, some other horrible side-effect will remain.

We have seen how life can work, we are generally not optimists, so we assume that the worst will happen to us. Therefore, we would rather stick with the current known pain and its familiar circumstances than trade it for a lot of unknown circumstances, that could include a lot of social interactions with a lot of unknown people in a lot of unknown places that could result in even more pain and unknown complications.

You know that bumper sticker that says mean things about mean people? It’s been around for years. You know the one – it says, “Mean People S#!%.”

The first time I ever saw that sticker on the back of someone’s car I gave them a WIDE berth. Definitely did not want to get into their way for fear they might decide for some reason that I was mean and would then proceed to do me harm.

The funny thing was, the other day I mentioned to a neurotypical friend how oxymoronic I found that bumper sticker to be. My friend stopped, thought for a minute, and actually thought the bumper sticker was OK! Seriously?!

After I explained that saying someone, “s#$%s,” is mean (I really didn’t think something this obvious needed explaining!), my friend had to agree that the driver with the bumper sticker is now just as mean as the people this driver is supposedly trying to call out.

This bumper sticker helps bring home the reality of the verses in Matthew 5 where Jesus says to be good to those who are your enemies. Because if we are not, then we are just as despciable as them (hey, that’s two weeks in a row God has had me blog on that section of the Bible – hmmmm, God is up to something here…).

This interaction with my friend is a poster child for the social problems those of us with Asperger’s encounter. We are constantly confused by the double-standards that neurotypicals live by (e.g., thinking that it is not mean to say something mean about a mean person to everyone who drives by).

I believe that is one of the reasons God has allowed us Aspies to be around – we point out the obvious hypocrisies considered normal, acceptable behavior to everyone else.

However, before we Aspies become too high on ourselves, remember that even though we realize these hypocricies that are hidden to others, we are no better at living out the truth. Ironically, because of our extreme sensitivity and difficulty at doing more than one thing at a time (e.g., feeling angry and being able to think of the correct behovioral response at the same time), we spend more time being angry with people and more time treating them poorly than much of the general population.

Thank you God for using us to show others the truth of what you expect of us. Thank you for keeping us humbled by the limitations of our syndrome. Thank you that by relying on you, you can help us act in accordance to your will, when we can not on our own.

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